The 49ers Insider Podcast

About ALS


Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, is a fatal, neurodegenerative illness that affects nerve cells in the brain and the spinal cord.


•    The average life expectancy of a person with ALS is two to five years from diagnosis. 
•    As the disease progresses, people with ALS lose the ability to walk, move, speak, swallow and, eventually, to breathe– all while the mind and senses continue to function.  
•    Every 90 minutes, someone is diagnosed with ALS. Every 90 minutes, someone loses their battle.
•    ALS is not contagious and does not discriminate – it affects men and women of all ages, ethnic backgrounds, and socioeconomic communities around the world.  
•    Approximately 10% of those diagnosed have a hereditary or familial form of the disease. 
•    Military veterans are diagnosed with ALS nearly twice as often as the general population. 
•    Most people with ALS remain at home throughout the course of the disease and managing the progression of the disease is emotionally, physically and financially draining on families.
•    The annual costs for home care, coupled with the cost of necessary equipment (which includes speech, mobility, transportation, etc.) can exceed $200,000 per year.
•    Currently, there is no known cause and no known cure.